How many of these rare disorders do you know about?
Angelman Syndrome, Rubinstein Taybi Syndrome, Gaucher Disease, Rare Chromosomal Anomalies, Pompe Disease, Trisomy 18, Achondroplasia, Beta Thalassemia Major, and more.
Watch this video to hear from 3 families about their journey with rare disorders. We can never imagine the strength and tenacity needed for these families.
https://youtu.be/2P9nX1ySW5k?list=TLGGuifdQouj5q0yOTA4MjAyMw
Raise Awareness for Rare Disorders
As part of our initiative to raise awareness for Rare Disorders, catch 2 of our LIVE cooking tutorials hosted together with Rare Disorder Society (Singapore) where our hosts share with you more about their journey.
https://youtu.be/m3f-U5KUF5E?list=TLGGiDqNuLmY0F4yOTA4MjAyMw
Learn How To Make Wholesome Meals with Christy Chang, Astrid Teoh and Wendy Loh
https://youtu.be/Mpim7dbGXFA?list=TLGG96ybaJxrDrYyOTA4MjAyMw
Malay-style Hokkien Prawn Noodles & Ebi Sushi Bake with Fizah, Shalina and Juliana
Together, we can make a difference. If you’d like to help, the link to donate can be found at:
https://www.giving.sg/rare-disorders-society-singapore/carry_hope_2022
About Rare Disorder Society (Singapore)
Rare Disorders Society (Singapore) is a non-profit organization that focuses on and supports rare diseases patients in Singapore. Established in 2011, it aims to create awareness about various life-threatening rare diseases.
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